History of EDFA

Shared Eating Disorder Experiences 

In late 2015, a group of parents met at an eating disorders conference, and began to meet regularly to talk about their shared experiences of caring for a loved one with an eating disorder.  

They found the loneliness, fear and doubt overwhelming, and lack of eating disorder help, access to support and resources about eating disorders and treatment limited.

EDFA theme

There was very little eating disorder help in Australia for parents and carers, but having found solace in each other and realising the benefits of connecting with others who personally understood the journey, it became clear an organisation like this was desperately needed here in Australia. 

The only way they could enable the support for families that they had longed for in their own journeys was to create an organisation themselves.

And so EDFA (Eating Disorders Families Australia) was born. 

Family enjoying a meal

EDFA is launched!

In July 2016, the parents celebrated the registration of Eating Disorders Families Australia (EDFA) as an Australian Public Company Limited by Guarantee.

This was followed by registration with the Australian Charities and Not-for-profits Commission (ACNC), the Australian Tax Office and the attainment of the Deductable Gift Registration.

This original group of parents became the inaugural Board of EDFA.

As a national organisation, EDFA is the only group with the sole focus of supporting families and carers of people with eating disorders.

We thank you for your support as we pursue our vision of:

“An Australia where eating disorders struggle to emerge, thrive or persist.”

Watch this video to discover why an organisation like ours is so desperately needed.

What it's like to live with an eating disorder...

“It’s 11pm. Mum and Dad have been pleading with me to eat my dinner for the past three hours. They’ve had to cancel dinner with their friends yet again. Their friends don’t understand why this keeps happening, they don’t understand why I can’t 'just eat'. They visit the doctor who tells them they should be doing more. That I, their child, is just being difficult. That it’s 'normal for teenage girls to want to lose weight.' Mum and Dad know better. They know their daughter best. They know I am sick. Even while I scream hate at them (the voice in my head has overruled the kind-hearted daughter they used to know), they know it’s not really me speaking, but it still hits them like a train. They’ve become increasingly isolated from their family and friends who are unable to truly understand. They go to bed feeling defeated and exhausted, wanting nothing more than for someone to actually 'get it'. For someone to tell them they are not alone, that this isn’t their fault. That they can get me, their daughter, back. But that support is hard to find, almost impossible. This has become reality for Mum and Dad. This is the reality of caring for someone with an eating disorder.”

Become a member of EDFA for $25 per year (Australian Carers Only)

EDFA is a proud not-for-profit, predominantly volunteer-run organisation. 

We invite you to be part of a revolutionary peer support group making positive changes in the eating disorder space. Strength in numbers means we are able to affect change and have the collective voice of the carers recognised.

We provide opportunities to connect with other parents and carers who share your experiences, helping you to feel less alone and isolated.

Yearly membership is just $25.

Membership gives access to:

A range of resources in our Member Only section of the website including Educational Recordings, Member Recommended Clinicians and Services, and more.

Over 70 support groups and education sessions per year. including:

Twice monthly education sessions

strive Carer Support Groups for carers of loved ones with any type of eating disorder (run three times each month)

strive ARFID Carer Support Group (run monthly)

strive bulimia nervosa Carer Support Group (run quarterly)

strive binge eating disorder Carer Support Group (run quarterly) 

strive4Men Carer Support Group (run quarterly) – a group for male carers 

siblings Support Group (run monthly) – a group for siblings of those with an eating disorder

daily online support through our private strive Australia Facebook Group and the opportunity to connect, share, learn and ask questions is another benefit of being part of our EDFA community.

discounts to eating disorder events and conferences

Your membership helps EDFA with ongoing costs of running a not-for-profit organisation, and importantly, shows Government that families value, need and believe in this type of lived experience support. Strength in numbers helps EDFA lobby as the collective voice of carers for  better services, treatments, access to expert clinicians and specialised eating disorder units, to help our loved ones in their recovery journey and to acknowledge the impact of an eating disorder diagnosis on the entire family unit.

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