Hearts Behind the Hope: Meet Rohan (Volunteer Story)
If you asked Rohan why he’s here, he won’t give you a polished answer …he’ll give you an honest one.
He came to EDFA because, like so many of our volunteers, he’s lived it. “We were in a bind… the days were very dark,” he shares. Supporting carers now is his way of giving back to the organisation that stood beside his family when they needed it most.
What Rohan brings to the room isn’t loud or flashy, it’s something far more powerful compassion and presence. He’s learnt that facilitation isn’t about having the perfect words but about listening deeply, holding space and sometimes just sitting in the uncertainty with someone. “You hear stories that challenge you,” he says, “and you realise this could be me. That’s where empathy really comes from.”
One thing he wants every new carer to know? Take a breath. Stay open. No two journeys look the same but there is always something to learn and always common ground to find. Look for the similarities not the differences.
Rohan speaks openly about the complexity carers carry, in regards to the constant navigation of food, emotions, family dynamics and the invisible mental load that few truly understand. “There are so many moving parts,” he says, “and not everyone knows how to help. Sometimes what matters most is just being heard.”
Outside of EDFA, you’ll find him walking his dog in the sun, coffee in hand or singing (enthusiastically, if not perfectly) in a choir he’s been part of for 14 years. Music, movement and connection keep him steady when things feel heavy.
And if he could say just one thing to carers reading this?
You’re not alone even when it feels like you are. There are people who truly understand and EDFA and their network of other carers are here to walk alongside you.
Rohan hosts the Men’s Online Support Group helping support men who are caring for a loved one with disordered eating.
Additional resources:
The needs of carers: a comparison between eating disorders and schizophrenia (2008)
The experience of living with a person with an eating disorder: the impact on the carers (2005)
Gender differences in caregiving among family – caregivers of people with mental illnesses (2016)
Eating Disorders Families Australia (EDFA) provides support and services for carers supporting loved ones with neurodivergence and an eating disorder.
EDFA’s Men’s Support Group is open to any carer identifying as male, including dads, partners, siblings, and friends, who are supporting a loved one with an eating disorder. The group is held every two months in the evenings, providing a safe space to connect, share experiences, and gain support from other males who understand.
EDFA’s Fill The Gap counselling service offer free, one-on-one online counselling to support carers in navigating the challenges of caring for a loved one with an eating disorder or disordered eating concerns.
Please contact Administrative Assistant Bailey Wightman on 03 9125 5670 or email bailey.wightman@edfa.org.au if you need support accessing the service.
About Eating Disorders Families Australia
Eating Disorders Families Australia (EDFA) is the only national organisation solely for carers and families of those with an eating disorder. EDFA provides support, EDucation, advocacy, and FREE online counselling services and annual membership. EDFA has a private Facebook forum, providing a safe place for eating disorder carers and family members to share experiences, seek advice and assistance, and find hope.