The Academy For Eating Disorders (AED) World Eating Disorder Healthcare Rights
The Academy for Eating Disorders (AED) has published a document describing World Eating Disorder Healthcare Rights, the AED Global Blueprint for promoting Excellence in Care through Consumer-Carer-Professional Partnerships. Please note that AED uses the words ‘patient’ and ‘caregiver’ in their document EDFA has used the words ‘consumer’ and ‘carer’ to apply an Australian terminology and context.
Access to Quality Care
- All consumers have the rights to immediate care for medical and/or psychiatric instability followed by timely and non-discriminatory access to appropriate speciality care care.
- All consumers, caregivers (carers) and family members have the right to be treated with respect throughout the assessment, planning and treatment process. Consumers and carers should never be judged or stigmatised based on symptoms, behaviours or past treatment history.
- When making health care decisions, patients and carers/caregivers have the right to full disclosure by healthcare professionals about treatment best practices, risks costs expected service outcomes, other treatment options and the training and expertise of their clinicians.
- Families and other caregivers/carers have a right to participate in treatment as advocates for the best interests of their loved ones. Care giving responsibilities and degrees of participation will necessarily vary depending on the age, mental state and diagnosis of the consumer as well as carergivers skills, availability, personal health, resources and other circumstances.
- All consumers and carers have the right to establish regular and ongoing communications through clearly defined channels. Carers/Cargivers and family members have the right to communicate their observations and concerns to professionals and to receive information when the consumers and to receive information when the consumers medical stability and/or psychiatric safety is threatened or at risk.
- All consumers and carers have the right to expect their health professional to understand, communicate and respect the applicable privacy or age of consent legislation that govern the communication of health and treatment information as well as the circumstances and conditions that may override privacy concerns or transfer authority regarding treatment decisions.
- All carers/caregivers have the right to receive information, resources, support services to help them understand and carry out the expectations and responsibilities of their roles as partners in treatment.
- Eating Disorders are not lifestyle choices and do not discriminate by age, race, gender, sexual orientation, body size, weight or ethnicity.
- All carers/car partners are obligated to act in the best interests of the consumer.
- Eating Disorders are treatable and full recovery is possible.
Carer and/or caregiver. In Australia as per the relevant commonwealth and or state and territory Mental Health and Carer Legislation.
Speciality Care. Speciality care for eating disorders is treatment administered by professionals with eating disorder specific training and experience and should be comprehensive empirically-informed, safe and leading to recovery.
Care Partners. A team of carers/cargivers and health professionals working together to implement a consumers treatment plan.